#communication disorder

[goodgriefnd]

Neurodivergent Passport

A wee update with some exciting news about My Neurodivergent Passport: a tool to communicate your needs, strengths, and sensory/communication profiles.

Following some feedback the passport has been updated.

You can now get a printed version of My Neurodivergent Passport! You can buy it here!

You can also get it as a free PDF on my blog.

[spooksforsammy]

Having communication issues is so much more then “oh can’t speak”. Because for many

1. It’s a problem also with brain. Often brain and mouth not connected (?) so even if have thoughts can’t get out

2. It effects every little thing

If not having need met first thought usually communicate that to person. But when have communication issues is easier think thought then say.

So when need more help complete task but can’t say that. Usually means don’t get that help need. So keep trying do task without that help. Which means task might get done, but is being done in way where is like never even happen.

So imagine it’s like that. But for everything. When want eat certain thing. Or don’t like certain clothes. Or want certain items. But also for basic needs. Need help showering/ bathing. Need help eating. Or help make food. Or help just communicate in general

Which also means.

3. Probably often wish other people can see struggle and just help anyways. Because can’t say need that help.

But people can’t read your minds. And some people run off idea that if don’t say need help won’t give. So no matter how much wish and wish and wish, unless lucky where have support that able see struggle and don’t have mindset will say need help if needed it, likely don’t get that extra support.

And sadly sometimes speech therapist. People who meant help with communication issues. Also have that mindset that if truly need help will ask. So they also not option to help fix communication problems.

Because even if obvious is struggling. Can see the struggle the pain the frustration in the person, is possible won’t get the help need.

[back-and-totheleft]

I saw Oliver Stone on our news in the Netherlands last year promoting his last film. He seemed very annoyed by us Dutch. The journalists said he was very rude.

This is actually an interesting incident regarding disability and communication disorders, so pardon me for the length of this reply.

I watched video clips of Oliver's press conference for Nuclear Now in the Netherlands. I also read the account on Instagram from Dutch journalist Desiree Dag-Verzitter, the moderator. She described that when she introduced herself to Oliver, he had her repeat her name several times, until her husband - on Oliver's left side - learned directly into Oliver's ear and spelled her name. Oliver then brightened and pronounced her name in French (his native language).

Desiree wrote that she had calculated that the scheduled time of the conference should have allowed each journalist two questions. However, each question had to be repeated into Oliver's ear by Rob Wilson, his longtime producer, which severely cut into that time. When Desiree said she'd promised the reporters two questions apiece, Oliver angrily noted that he hadn't, and it was a stupid thing for her to promise. This was interpreted by Desiree (and a couple of other journalists, as evidenced by a newspaper clipping she included in her post) as Oliver Stone being a difficult asshole.

Here is some important background: on the night of January 1-2, 1968, Oliver Stone was a soldier in Vietnam fighting in the New Year's Battle of 1968. At one point, while moving from one foxhole to another, he was concussed by the explosion from a beehive round. He lost consciousness for a period of time and when he awoke, noticed immediately that his hearing was impaired. At that time, the Army had no concussion protocol, as it does now. They also did not care about noise-induced hearing loss (NIHL) which is, incidentally, the #1 combat related disability. Here is a concise definition from the National Institute on Deafness and Other Communication Disorders:

NIHL can also be caused by extremely loud bursts of sound, such as gunshots or explosions, which can rupture the eardrum or damage the bones in the middle ear. This kind of NIHL can be immediate and permanent. Loud noise exposure can also cause tinnitus—a ringing, buzzing, or roaring in the ears or head. Tinnitus may subside over time, but can sometimes continue constantly or occasionally throughout a person’s life. Hearing loss and tinnitus can occur in one or both ears.

Oliver received no medical treatment at the time, being put to work on burial duty the morning after the battle. (Two weeks later, he'd be more seriously wounded in another explosion, which caused shrapnel wounds and another loss of consciousness.) He did mention asking an Army doctor some time later about his hearing issues, but was dismissed.

Since that incident at age 22, Oliver has been deaf in his right ear, and he's also described tinnitus in his remaining ear. How do I know it's his right ear? Because of the below moment from behind the scenes on Alexander. When Colin Farrell (who adorably is hugging Oliver's son Mikey) complains no one listens to him, Oliver responds, "That's, you know," while pointing to his right ear, which prompts Colin to mention Oliver's deafness:

(Not shown in the gif is Oliver's nonplussed reply: "That's true.") When you've also watched enough Oliver Stone interviews, like I have, you also notice how he favors listening on his left side. Now NIHL is not something that normally improves, in fact it gets worse with age. Oliver has worn hearing aids (as mentioned by at least one interviewer) for at least the past 15-20 years.

Back to the Netherlands press conference. I don't know the circumstances, and I can't confirm, but it seems to me from the clips that Oliver did not have his hearing aids, and that's why he needed someone to repeat everything directly into his "good ear."

Oliver Stone can certainly be brusque and abrasive at times, but it rubs me the wrong way that those reporters did not accommodate, and indeed seemed actively annoyed, at someone with a hearing disability in a noisy room full of people. It can be overwhelming and frightening to have your modes of communication cut off. Perhaps he got angry because he felt embarrassed and self-conscious at his vulnerability, which is an understandable human reaction.

[ladysternchen]

All of Arda Is Autistic- Maeglin

Maeglin looked up from the newly-forged sword he had just showed to his uncle, praising it’s many assets, only to stare straight into Idril’s eyes. Immediately, he felt his face growing hot and lowered his gaze, hating himself for his insecurities. 

“I think I never heard you talk so much, and with so much passion.”

It was a statement, nothing more, but Maeglin was sure he discerned a note of accusation in his cousin’s tone. 

“It is a good sword, Maeglin, the likes of which you will not find often even here among the most skilled smiths of Gondolin.”

Maeglin nodded, encouraged once more by his uncle’s earnest praise.

“It is the alloy that makes it special, lord! The mountains are rich with may different metals, but no-one seems to have delved for them in earnest yet!”

“No.” Turgon agreed. “Indeed we have had no knowledge of the strengthening of swords by using different metals. Our interest in those were mainly so to make jewellery and other fair works of art.”

Maeglin bowed courteously, while he could practically hear his father’s voice in his mind, scoffing. What use were fair trinkets, when there were blades to be wrought cunningly, so that they would become near sentient?

Turgon returned the small bow and left, but Idril, to Maeglin’s great surprise, did not. 

“Why are you so, cousin?” she asked, and Maeglin tensed at once.

“How?”

Idril eyed him thoughtfully for a while, then said: “I’ve never heard you talk of your parents’ deaths, nor have I seen you shed a tear for them since. For long, I thought you incapable of any such thing as emotions, but yet here you stand and explain the alloy of metals with such reverence in your voice that it borders on love.”

Maeglin considered what she had said for a moment, then answered: “It is not so that I do not grieve them. My mother, mainly, but also my father. But what good is there in speaking about those grievous things, when they cannot be undone?”

Idril nodded after a while, apparently lost in thought.

“How was it, growing up in the dark? I cannot imagine it being anything but horrible.”

“Yet it was not.”

She looked at him wonderingly, and Maeglin could not help but feel heartened by her interest in him, so he told her of his childhood and youth, something he could never have imagined doing.

“… you see, whatever the common conception, my father was not some kind of monster. He was caught in his own mind, and often so, and never felt at home among the Eldar, but in his strange way, he loved us, my mother and me. He cared for us. All this, the lore of how metals work, I learned from him, and he learned it from the Lords of Nogrod, among whom he was held in great respect. He was a fabulous smith!”

Idril wrinkled her nose.

“Well, but love does not excuse imprisoning others.”

“’t was only in the last years that Amil grew weary of Nan Elmoth. My father could never stand the light of the sun, he said it hurt him. But we wandered the forest by starlight, and we were content.”

A smile played about her lips.

“Aredhel never stayed long anywhere, I guess.”

Maeglin shook his head.

“No.”

“But you know, had he truly loved her, he would have let her go!”

He stared at her, aghast. How could letting go mean love? Idril stared curiously at him and he held her gaze, even if it made him very uncomfortable. After a while, she turned away with a sigh, leaving Maeglin behind, and he sensed that he had somehow said something wrong, but how and what was a mystery to him.

[imautistsick]

Accidentally pulled off too much of my toenail, now I'm limping cause it hurts... then this morning I accidentally sliced the tip of my thumb cutting an apple... and I'm bumping into more things... funny how my brain is quiet now that I'm pregnant again but like, sensory processing is WORSE

[fallenstarcat]

sometimes i feel like people forget autism is a disability. and that’s not a bad thing! i’m all for disability acceptance, im proud of my disabilities. but i feel like we forget autism can hurt.

it hurts that i have to put more time and energy into socializing than others.

it hurts when i need to move so bad, usually cause im overwhelmed by either my surroundings or emotions, that i thrash and hurt myself.

it hurts that i cant be in places that are too loud or too bright, which on bad days can be as simple as a small, quiet noise or dim lights.

it hurts that i struggle to tell when im hungry, thirsty, tired, etc. so i can’t properly take care of myself. it doesn’t help my insomnia and i get very nauseas and get UTIs.

i 100% believe in autism acceptance. i don’t want a cure. but i also want us the acknowledge that it can hurt. it doesn’t mean my entire life will hurt, but some parts will. and i want a community where we can see both sides, see the hurt, and celebrate it anyway.

[autismwithoutpremium]

Just a thought

[rustybutterknife]

Microdosing polyamory by dating a system

[angelspearlheart]

[vidacarehomehealth]

As trusted providers of skilled nursing in California, we need to help shed light on a condition that often goes unnoticed—aphasia. Recognizing the early signs can pave the way for timely intervention and support.

[bli-o]

hey autistic people who get overwhelmed by large groups or noise or conversation or etc etc etc you’re not evil for wanting to leave a family gathering. just so you know.

[goodgriefnd]

How Common is Neurodivergence?

[image id: poster of "How Common is Neurodivergence?.” There are 12 circles and five small images: an image of a brain, speech bubbles, an infinity sign, a person reading, and a person surrounded by arrows and balls. Each of the 12 circles has a percentage representing how common a particular form of neurodivergence is written in Open Dyslexic font. Full transcript, more information, and references under the cut.]

More Information

Forms of neurodivergence represented here are focused on neurodevelopmental disorders.

These percentages are representative of percentage in general population and do not reflect percentages within neurotypes which are often higher due to co-occurrence being the norm, rather than the exception, within neurodevelopmental disorders; for example, 33-45% of people with ADHD will also have dyslexia (Butterworth & Kovas, 2013), whereas only 10% of the general population are dyslexic (British Dyslexia Association [BDA], 2023).

Certain neurodivergencies are often underrepresented and under-reported, so the percentages are likely to be higher; for example, one study suggests that rates for FASD in the UK may be as high as 17% (McQuire et al., 2019).

Some of the neurodivergencies represented here are umbrella terms and percentages given are representative of all forms of neurodiversity belonging to that term; for example, SpLds include dyslexia which is at a rate of 10% (BDA, 2023) and dyscalculia which is at 3-7% (Haberstroh & Schulte-Körne., 2019). Tic Disorders at 1% are another example here, as this is inclusive of Tourette Syndrome which is at 0.6%, and around 1 in 5 individuals exhibit tics at some point during childhood (Cavanna et al., 2017).

______________

Transcript in Full

1% Intellectual Disability

10% Language Disorder

4% Speech Sound Disorder

5% Stuttering

7.5% Social (Pragmatic) Communication Disorder

1.7% Autism

5% ADHD

10% Specific Learning Disorder (SpLD)

5% Developmental Co-Ordination Disorder (DCD)

3-4% Stereotypic Movement Disorder

1% Tic Disorders

3.6% Fetal Alcohol Spectrum Disorders (FASD)

______________

Sources

American Psychiatric Association. (2022). Diagnostic and Statistical Manual of Mental Disorders (5th Ed., Text Rev.).

Arvidsson, O., Gillberg, C., Lichtenstein, P., & Lundström, S. (2018). Secular changes in the symptom level of clinically diagnosed autism. Journal of Child Psychology and Psychiatry, 59(7), 744–751.

Attention-deficit/hyperactivity disorder (ADHD). PsychDB. (2022, November 29).

Autism spectrum disorder (ASD). PsychDB. (2022, May 19).

Butterworth, B., & Kovas, Y. (2013). Understanding neurocognitive developmental disorders can improve education for all. Science, 340(6130), 300–305.

Cavanna, A. E., Coffman, K.A., Cowley, H., Fahn, S., Franklin, M. E., Gilbert, D.L., Hershey, T.G., Jankovic, J., Jones, M., Leckman, J.F., Lehman, R., Mathews, C.A., Malaty, I., McNaught, K., Mink, J.W., Okun, M.S., Rowe, J.A., Scahill, L.D., Scharf, J.M., Schlaggar, B.L., Stewart, E., Walkup, J.T., Woods, D.W.. (2017). The spectrum of Tourette Syndrome and TIC disorders: A consensus by Scientific Advisors of the Tourette Association of America. Tourette Association of America.

British Dyslexia Association. (2023). Dyslexia. British Dyslexia Association.

Dyspraxia at a glance. Dyspraxia Foundation. (2023).

Haberstroh, S., & Schulte-Körne, G. (2019). The Diagnosis and Treatment of Dyscalculia. Deutsches Arzteblatt International, 116(7), 107–114.

Ketelaars, M. P., Cuperus, J. M., van Daal, J., Jansonius, K., & Verhoeven, L. (2009). Screening for pragmatic language impairment: The potential of the Children’s Communication Checklist. Research in Developmental Disabilities, 30(5), 952–960.

May, P. A., Baete, A., Russo, J., Elliott, A. J., Blankenship, J., Kalberg, W. O., Buckley, D., Brooks, M., Hasken, J., Abdul-Rahman, O., Adam, M. P., Robinson, L. K., Manning, M., & Hoyme, H. E. (2014). Prevalence and characteristics of fetal alcohol spectrum disorders. Pediatrics, 134(5), 855–866.

McQuire, C., Mukherjee, R., Hurt, L., Higgins, A., Greene, G., Farewell, D., Kemp, A., & Paranjothy, S. (2019). Screening prevalence of fetal alcohol spectrum disorders in a region of the United Kingdom: A population-based birth-cohort study. Preventive Medicine, 118, 344–351.

Norbury, C. F., Gooch, D., Wray, C., Baird, G., Charman, T., Simonoff, E., Vamvakas, G., & Pickles, A. (2016). The impact of nonverbal ability on prevalence and clinical presentation of language disorder: Evidence from a population study. Journal of Child Psychology and Psychiatry, 57(11), 1247–1257.

Polanczyk, G. V., Willcutt, E. G., Salum, G. A., Kieling, C., & Rohde, L. A. (2014). ADHD prevalence estimates across three decades: an updated systematic review and meta-regression analysis. International Journal of Epidemiology, 43(2), 434–442.

Polanczyk, G., de Lima, M. S., Horta, B. L., Biederman, J., & Rohde, L. A. (2007). The worldwide prevalence of ADHD: A systematic review and metaregression analysis. American Journal of Psychiatry, 164(6), 942–948.

Prevalence and Therapy Rates for Stuttering, Cluttering, and Developmental Disorders of Speech and Language: Evaluation of German Health Insurance Data. (2021). Frontiers in Human Neuroscience, 15(645292), 1–13.

Social (pragmatic) communication disorder. PsychDB. (2021, March 29).

Stereotypic movement disorder. United Brain Association. (2022, August 8).

Wren, Y., Miller, L. L., Peters, T. J., Emond, A., & Roulstone, S. (2016). Prevalence and predictors of persistent speech sound disorder at eight years old: Findings from a population cohort study. Journal of Speech, Language, and Hearing Research, 59(4), 647–673.

UCL. (2013, April 19). Learning disabilities affect up to 10 per cent of children. UCL News.

[collectivewarmth]

one of the most important things about dissociative identity disorder and generally being a system that i wish people would understand is that it truly isn’t as cut and dry as it may seem for member count.

you’ll see people who say they have “six alters” and then immediately assume it’s six fully fleshed out equal individuals with no confusion or fuzziness regarding identity. that’s simply not true in a majority of cases, as i have seen.

most systems still VERY much deal with confusion regarding potential splits, go through dissociative episodes where they’re unsure of who they are, sometimes feel no attachment towards any identities, feel like they might have split and then suddenly that person is gone, unsure if alters they haven’t heard from often have gone dormant, not sure how to react when alters do come out of dormancy, etc.

it’s not a fun feeling and it’s genuinely unfair in certain situations to force systems to list every single alter to you with full certainty, as if it will never change. because it will. for so many different reasons, systems will grow, they will shrink, they will fuse, they will develop. you can’t expect the person with the dissociative disorder and lack of core identity to be able to keep up a perfected list of forever, it’s simply impossible. you may have alters who stick with you, but that doesn’t mean changes won’t happen.

and systems who may be reading this — please don’t feel bad. you are not a hassle, you are not a headache, and you are not an inconvenience for simply coping with something like this. it’s out of your control and the only thing you can do is continue to cope to find ways to help yourself retrain from these reactions. please don’t allow yourself to be harmed by others who don’t understand what you are going through. there are people who will accept and love you for who you are, all of you.

past, present, and future.

[aurangg]

Something really not talked about with trauma disorders is the paranoia.

Being scared and jumping to conclusions when people stand a little too close to you, not believing people’s compliments and thinking they have hidden motives, not believing when people tell you they like/love you, thinking that strangers you see on the street want to hurt you, etc.

[neurodivergent-brain]

It shocks me how many people don’t realise that the autism spectrum isn’t this:

That is in fact a very outdated and in many ways insulting…

THIS IS WHAT THE SPECTRUM IS:

And it is actually incorrect to say “well everyone is somewhere on the spectrum”

Someone may show traits that are associated with autism but that doesn’t mean they are on the spectrum but that doesn’t necessarily mean that they are autistic,

Just like someone who is autistic may show traits of people who are neurotypical.

When I am speaking to friends who may use incorrect language or may have outdated information of what the spectrum is, I explain to them why it is important to change how we view and talk about being neurotypical. None of them are intentionally being offensive and are often happy to get a better understanding. It’s always important to be open to changing how we view something so that everyone is able to feel accepted and understood; therefore if there is any information or something I’ve said that is offensive, incorrect or even if you have a different perspective than me, please let me know as I only want to be respectful of others and am always willing to see other people reasons for their views.

Thank you for taking the time to read this!